Friday, April 6, 2018

Traveling with PH

I know its been a while since I made a blog, been really busy helping with different projects for Team Phenomenal Hope and things for the PH walk that we are having next weekend, on top of fighting off a nasty sinus infection, I have been running around like a chicken with my head chopped off.

So many people ask, how to travel with PH? What do you do for your O2 when flying or going on a cruise? Can we take our medications on the flight, do we need proper paperwork for TSA to get on the flight?

Traveling can be very stressful while trying to get all your things in order, but it also needs to be fun, so enjoy it while you can.

First and Foremost, make certain you are allowed to travel by the way in which you wish to go, whether driving, flying, train or boat.   Some patients are not able to fly at that high altitude because their condition won't permit it.  Also if you are not on O2 you may need supplemental O2 while on the flight, be sure to check with your doctor and see what they say about it.

Second, have your checklist in order.  PHA has a great page on their website that gives you a guide on traveling, which I will include some of that information below.  Here is the website link to go to for more information: https://phassociation.org/patients/living-with-ph/traveling-with-ph/


  1. Letter from PH doctor describing medical requirements 
  2. Doctors names and phone numbers -Contact information of PH doctor in area where you are travelling 
  3. Insurance information and complete list of medications 
  4. Phone numbers of special needs department, oxygen providers Cell phone numbers of anyone meeting you with oxygen
  5. Oxygen Prescription 
  6. Specialist contact in the area of which you are traveling in case of emergency

Contact O2 company to see if they can deliver additional tanks for your trip. 

 Information for O2 can be found here:
 https://www.faa.gov/about/initiatives/cabin_safety/portable_oxygen/
https://phassociation.org/wp-content/uploads/2017/01/Patients-living-with-PH-AvoidingPitfallsDuringAirTravel.pdf

Stay tuned for my next blog Newly Diagnosed and what to expect 😊💜


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